| 摘要: |
| ［摘要］ 目的 调查接受肝移植术后5年患儿的生活质量。方法 采用儿童生活质量量表（Pediatric Quality of LifeTM 3.0，PedsQLTM3.0）移植模块制定调查问卷，调查在该院肝脏外科接受肝移植手术后5年的患儿40例。结果 患儿移植时中位年龄为11月，调查时中位年龄为97.5月，身高129.5（110，168）cm，体重29.3（17.0，88.5）kg，体质量指数（BMI）15.6（10.7，31.4），体重Z值0（-1.97，2.18），身高Z值0.38（-2.48，2.53），BMI Z值-0.26（-4.47，3.16）。生活质量总分均数为（73.2±13.8）分。“对外貌的自我感觉”维度与随访年数呈中度正相关，“疼痛”维度与身高Z值呈中度正相关（r=0.357，P=0.024；r=0.495，P=0.001）；“移植和其他人的关系”维度与BMI及BMI Z值呈中度负相关（r=-0.317，P=0.046；r=-0.384，P=0.032）；“担忧”维度与体重Z值呈中度负相关（r=-0.319，P=0.045）。结论 肝移植术后5年患儿的生活质量尚可，随访年数、BMI、身高Z值、BMI Z值以及体重Z值可能是影响肝移植术后远期生活质量的因素。 |
| 关键词: 肝移植 小儿 生活质量 调查研究 |
| DOI：10.3969/j.issn.1674-3806.2019.10.04 |
| 分类号:R 657.3 |
| 基金项目:上海市青年科技英才扬帆计划项目（编号：18YF1412700） |
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| The investigation of quality of life among the pediatric patients with liver transplantation for 5 years |
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LU Ye-feng, WANG Yan, WAN Ping, et al.
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Department of Hepatic Surgery, Renji Hospital Affiliated to School of Medicine, Shanghai Jiaotong University, Shanghai 200127, China
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| Abstract: |
| ［Abstract］ Objective To survey the quality of life(QOL) among the pediatric patients with liver transplantation for 5 years. Methods The Pediatric Quality of LifeTM 3.0 Transplant Module was adopted to develop the questionnaire of the survey. Forty pediatric patients who had received liver transplantation for 5 years were investigated. Results The median age at the time of transplantation was 11 months, and the median age at the time of the survey was 97.5 months. The median height of the pediatric patients was 129.5(110,168)cm. The median weight was 29.3(17.0, 88.5)kg, and the median body mass index(BMI) was 15.6(10.7, 31.4)kg/m2. The median weight Z value was 0(-1.97, 2.18) and the median height Z value was 0.38(-2.48, 2.53). The median BMI Z value was -0.26(-4.47, 3.16). The mean scores of QOL were (73.2±13.8)scores. The dimension of “self-perception of appearance” was moderately positively correlated with the number of follow-up years, and the dimension of “pain” was moderately positively correlated with the Z-value of height(r=0.357, P=0.024; r=0.495, P=0.001). The dimension of “transplanting relationships with other people” was moderately negatively correlated with BMI and BMI Z value(r=-0.317, P=0.046; r=-0.384, P=0.032), and the dimension of “worry” was moderately negatively correlated with the Z-value of body weight(r=-0.319, P=0.045). Conclusion The QOL of the pediatric patients who have received liver transplantation for 5 years is normal. The years of follow-up, BMI, height Z value, BMI Z value and weight Z value may be the factors affecting the long-term QOL after liver transplantation. |
| Key words: Liver transplantation Children Quality of life(QOL) Survey |
